Refining interventions through formative research: a focus on ethical considerations in a family-based home-based counseling and testing (FBCT) intervention in KwaZulu-Natal
OUTPUT TYPE: Journal Article
PUBLICATION YEAR: 2019
TITLE AUTHOR(S): Z.Essack, N.Ngcobo, N.van der Pol, L.Knight, T.Rochat, M.Mkhize, H.Van Rooyen
KEYWORDS: FAMILY-BASED COUNSELING AND TESTING (FBCT), HIV/AIDS, INTERVENTION, KWAZULU-NATAL PROVINCE
Print: HSRC Library: shelf number 11102
HANDLE: 20.500.11910/15060
URI: http://hdl.handle.net/20.500.11910/15060
If you would like to obtain a copy of this Research Output, please contact Hanlie Baudin at researchoutputs@hsrc.ac.za.
Abstract
Conducting formative research is a scientific, ethical, and community engagement imperative. This article describes how formative research refined ethical processes for a family-based home-based counseling and testing (FBCT) intervention in KwaZulu-Natal. In-depth interviews were conducted to explore community (n = 20) and key stakeholders (n = 20) needs, concerns, and perspectives on the FBCT model, including ethical issues for working with children and families. Data were analyzed thematically using NVivo software. Four key ethical considerations emerged, namely, respect for community norms and cultural practices; confidentiality, privacy, and forced disclosure; identifying potential risks and benefits; and voluntariness and capacity to consent. Data were used to refine the intervention and address participants concerns by engaging the community, providing ethics training for intervention staff, and incorporating independent consent mechanisms for adolescent HIV testing that supported opportunities for family-based testing and disclosure.-
Related Research Outputs:
- Targeting the right interventions to the right people and places: the role of geospatial analysis in HIV program planning
- Effectiveness of a health behavioural intervention aimed at reduction of risky sexual behaviours among young men in the KwaZulu-Natal province, South Africa
- Evaluating an incentivised behaviour change intervention for young women, aged 19-24 years in King Cetshwayo district, KwaZulu-Natal: baseline report
- Zwakala Ndoda: a cluster and individually randomized trial aimed at improving testing, linkage, and adherence to treatment for hard-to reach men in KwaZulu-Natal, South Africa
- Risky sexual behaviours among women of reproductive age in a high HIV burdened township in KwaZulu-Natal, South Africa
- An Implementation study of oral and blood-based HIV self-testing and linkage to care among men in rural and peri-urban KwaZulu-Natal, South Africa
- The psychosocial determinants of the intention to test for HIV among young men in KwaZulu-Natal province, South Africa
- Fifteen years of community-engaged HIV research in Sweetwaters, KwaZulu-Natal: a reflection on principles, practices and frameworks
- Report on the joint tuberculosis and HIV pilot survey in KwaZulu-Natal, South Africa 2019
- Geographical variation in HIV testing in South Africa: evidence from the 2017 national household HIV survey
- Time for the next steps
- Impacts and interventions: the HIV/AIDS epidemic and the children of South Africa
- Impacts and interventions: the HIV/AIDS epidemic and the children of South Africa
- The impact of HIV/AIDS on land issues in Kwazulu-Natal province South Africa: case studies from Muden, Dondotha, Kwadumisa and Kwanyuswa
- Kwazulu-Natal programme for survivors of violence
- Bloodwise? Knowledge and attitudes pertaining to HIV and blood donation in Durban
- Contemporary tourism at Dwesa-Cwebe
- Infrastructure in educare centres in KwaZulu-Natal
- Empowerment through service delivery
- The airport, the road and the school: infrastructure delivery in KwaZulu-Natal