Service providers' perceptions of families caring for children with disabilities in resource-poor settings in South Africa
OUTPUT TYPE: Journal Article
PUBLICATION YEAR: 2020
TITLE AUTHOR(S): G.Khan, D.Isaacs, M.G.Makoae, L.L.Fluks, T.Mokhele, Z.Mokomane
KEYWORDS: CHILD CARE, DISABLED PERSONS, FAMILY PARTICIPATION, POOR COMMUNITIES, RISK
DEPARTMENT: Developmental, Capable and Ethical State (DCES), Public Health, Societies and Belonging (HSC), Office of the CEO (ERM), Office of the CEO (OCEO), Office of the CEO (IL), Office of the CEO (BS), Deputy CEO: Research (DCEO_R), Office of the CEO (IA), Deputy CEO: Research (ERKC), Deputy CEO: Research (CGI)
Print: HSRC Library: shelf number 11394
HANDLE: 20.500.11910/15311
URI: http://hdl.handle.net/20.500.11910/15311
If you would like to obtain a copy of this Research Output, please contact Hanlie Baudin at researchoutputs@hsrc.ac.za.
Abstract
Caring for children with disabilities (CWD) is a challenging task for families and service providers alike. Even though previous research has explored experiences and perceptions of families who care for CWD, research focusing on service providers' perceptions of such families is limited. Through the lens of a care framework, the present study aims to explore service providers' perceptions of families caring for CWD in resource-poor settings in South Africa. Key informant interviews were conducted with managers of 10 organizations supported by the Nelson Mandela Children's Fund. An inductive thematic analysis was used to analyse the data. The findings revealed that family structure, poverty, service inaccessibility, negative beliefs, and stigma by community members, in addition to parental substance abuse, influenced how families care for CWD in resource-poor settings in South Africa. These findings have implications for policy amendments regarding the care dependency grant (CDG) to ensure that it benefits all CWD and not only those who need full-time care and services.-
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