HIV/AIDS caregiving without ARVs in Lesotho: food, medicine, body and emotions
OUTPUT TYPE: Monograph (Book)
PUBLICATION YEAR: 2010
TITLE AUTHOR(S): M.G.Makoae
KEYWORDS: FAMILY PARTICIPATION, HIV/AIDS, INFORMAL CARE, LESOTHO
Print: HSRC Library: shelf number 6812
HANDLE: 20.500.11910/3807
URI: http://hdl.handle.net/20.500.11910/3807
PUBLICATION YEAR: 2010
TITLE AUTHOR(S): M.G.Makoae
KEYWORDS: FAMILY PARTICIPATION, HIV/AIDS, INFORMAL CARE, LESOTHO
Print: HSRC Library: shelf number 6812
HANDLE: 20.500.11910/3807
URI: http://hdl.handle.net/20.500.11910/3807
If you would like to obtain a copy of this Research Output, please contact Hanlie Baudin at researchoutputs@hsrc.ac.za.
Abstract
The book chronicles poignant experiences of family members who provided care for HIV and AIDS patients before antiretroviral drugs were available in the public health sector in Lesotho. Central to the caregivers' experiences is the patients' bodies that need attention, resist care and project suffering. The issues of confidentiality, the 'minimum package of care', de-medicalisation of HIV/AIDS care and rationing are discussed to illustrate their significance in the studied care contexts. Policy and practice that are consistent with the ethic of care and ubuntu are needed in the provision of humane interventions. It is concluded that improved communication between care-recipients, health care providers and family caregivers about HIV diagnosis and prognosis as well as improved access to appropriate medical care are consistent with the ethic of care and ubuntu and these could influence caregiving experiences positively.-
Related Research Outputs:
- Confidentiality or continuity?: family caregivers' experiences with care for HIV/AIDS patients in home-based care in Lesotho
- The phenomenology of bodily care: caregivers' experiences with AIDS patients before antiretroviral therapies in Lesotho
- Family ties: reconstructing the care of vulnerable children: the 'orphan' label doesn't help
- Ambiguous diagnosis, futile treatments and temporary recovery: meanings of medical treatment among HIV/AIDS family caregivers providing care without ARVs
- Fragile families' experiences of caring for HIV-positive children: selected cases from the Eastern Cape and KwaZulu-Natal
- HIV/AIDS and land: case studies from Kenya, Lesotho and South Africa
- Impact of HIV/AIDS on SADC countries: recommendations to funders
- Southern Africa: a review of the region
- HIV/Aids and land: case studies from Kenya, Lesotho and South Africa
- An audit of HIV/AIDS policies in Botswana, Lesotho, Mozambique, South Africa, Swaziland and Zimbabwe
- Family and community interventions for children affected by AIDS
- Where the heart is: meeting the psychosocial needs of young children in the context of HIV/AIDS
- Just a little smile
- Containment and contagion: how to strengthen families to support youth HIV prevention in South Africa
- CHAMPioning families to fight AIDS
- An exploratory study of the impact of primary caregiver HIV infection on caregiving and child developmental outcome in the era of Haart: piloting the methodology
- Care environments for infants and young children affected by HIV/AIDS: final report
- Strengthening systems to support children's healthy development in communities affected by HIV/AIDS
- Going to scale: family- and school-based support for children affected by HIV/AIDS
- Aids orphan caregivers: silent angels